I saw my doctor today, and he gave me the shock of my life...literally speaking! He is my neurologist who is a movement specialist. And did he ever move me today. My limbs flew up in the air quite rigid. My body felt like a bolt of lightening hit me but stayed for at least a good minute before my doctor was able to put the lead back on. The lead fell off when I bolted. I couldn't speak or move. I thought my eyes were going to pop out, and my face was contorted as we as my whole body. I thought for an moment I was in serious trouble. My mind was telling my doctor to hurry and fix it. but he couldn't hear me. But he was right there in control. Thank God I was able to shake it off...literally speaking. Lol, I have Essential tremors
My doctor apologized for the episode today. He was just as shocked as I when that happened. I could feel his fingers moving quickly as he was trying to adjust the lead and fix the electrical input controlling my DBS implant. Thank God it lasted only a minute.
I was born with Essential Tremors aka ET. They have progressed tremendously with age. I have a full body tremor which looks like I am having a seizure that does not stop as long as I am awake. Again I say thank God for doctors and scientists who forge ahead in the name of science. 2010, I had brain surgery to implant my DBS aka Deep Brain Stimulator. It's truly a God given gift to not have a rigid body full of tremors. It's a calmness I can't explain. I still have tremors but not as gravely. That's why I saw my neurologist today to adjust the voltage on my new battery my neurosurgeon had just put in the week before.
I see my neurologist about a year after I have had a new battery put in my chest, and right after I've had a replacement to adjust the settings. It starts failing me about a year. He always adjusts it and put me on heavy anti-seizure medication until my next battery replacement. They won't replace the battery even though they can see it's failing until the second year when it literally reads on the computer that its failing. I think that's the insurance company. Normally the battery would last 5 years. Not me. I go through batteries every two years. What can I say...I must be special right?
I go back to se my neurologist nest week. Hopefully it just the normal diagnostic shocking procedure and not like today. I think it will be fine because as we three (my friend was with me) settled down he made some large notes to not go that far again. Phew...what an experience. Next on my agenda is to get weaned off these anti-seizure medication. They don't let me think.
Well that's about it for now so till the next time...Lots of love and God Bless.
Mary Helen
My doctor apologized for the episode today. He was just as shocked as I when that happened. I could feel his fingers moving quickly as he was trying to adjust the lead and fix the electrical input controlling my DBS implant. Thank God it lasted only a minute.
I see my neurologist about a year after I have had a new battery put in my chest, and right after I've had a replacement to adjust the settings. It starts failing me about a year. He always adjusts it and put me on heavy anti-seizure medication until my next battery replacement. They won't replace the battery even though they can see it's failing until the second year when it literally reads on the computer that its failing. I think that's the insurance company. Normally the battery would last 5 years. Not me. I go through batteries every two years. What can I say...I must be special right?
I go back to se my neurologist nest week. Hopefully it just the normal diagnostic shocking procedure and not like today. I think it will be fine because as we three (my friend was with me) settled down he made some large notes to not go that far again. Phew...what an experience. Next on my agenda is to get weaned off these anti-seizure medication. They don't let me think.
Well that's about it for now so till the next time...Lots of love and God Bless.
